Children that are born with certain conditions may need to have treatment for a large part of their life or even their whole life. This is true for some urology patients. While they are young, they (and their parents) will be supported by a large team of paediatric doctors and nurses that specialise in that urological condition.
For young patients the decisions are usually made by their parents, however as they start to get older, they will have more participation in the decisions around their treatment. This is important for the patients, as they should make decisions that they are conformable with.
During the transition, it is important that the child is taught how to make the best decision for themselves.
Mr Dan Wood has some tips to help this process:
Engage your child in their diagnosis and the previous treatments that they have had
Discuss problems/complications that they should look out for
Talk about types of treatments that they may need to have in the future
This process can take a long time and is something that should be done gradually over a number of years.
Doctors understand that this is a really important time for a patient and their family, so they will work hard to ensure that it is done in the best way!
Watch the YouTube video from Mr Dan Wood to learn more about transitional urology
There are lots of tools and websites that can be found on the internet to help with the transition from paediatric to adult care.
This article is intended to inform and give insight but not treat, diagnose or replace the advice of a doctor. Always seek medical advice with any questions regarding a medical condition.